Dani's story

Rare on Air

20-11-2024 • 5 minutes

This episode features Dani who lives with progressive fibrodysplasia ossificans (PFO). You will hear about her journey from the moment she was born to when she was 16 years old and found a lump on her back. Dani explores the problem of misdiagnosis and her journey with FOP.

Join Dani as she tells a story of frustration, overwhelming change and finally acceptance. Her story is a symbol of resilience as she shows that no obstacle is impossible to overcome with support and love from each other.