In this episode of Rare on Air, host Julien Poulain chats with Nicole Faccio, the recipient of the 2023 EURORDIS Social Media Award.
Known on social media as Facciolita, Nicole has built a significant following, with over 30,000 followers on Instagram and more than 100,000 on TikTok. She discusses with Julien her evolving experiences and perspectives on living with lymphedema, and how she started leveraging social media, and her compression garments, to cast a positive light on managing the rare condition.
Originally from Puerto Rico and now based in London, Nicole's story is one of resilience, fostering a supportive community, and dedication to educating the public, healthcare professionals, and fellow patients about lymphedema.
Tune in to learn more about Nicole’s compelling journey and her ongoing efforts to raise awareness through her innovative and engaging content!
Contact the podcast by emailing RareOnAir@eurordis.org, and join the conversation on social media using the hashtag #EurordisRareOnAir.
Also, do not forget to register for our 12th European Conference on Rare Diseases and Orphan Products (ECRD 2024), taking place online on 15-16 May 2024! Get your tickets now at: rare-diseases.eu.
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