Rare Disease Day Stories: Katie's story

Rare on Air

08-02-2024 • 4 minutes

Meet Katie in our 6th episode of Rare on Air stories, diagnosed with CMTC at just 5 months old, she gracefully navigates life's challenges, embracing her rarity with pride. From temperature-induced swelling to laser surgeries, Katie shares her journey with courage.

School, sports, and passions—nothing held her back. Now 30, she advocates for herself and others.