Rare Disease Day Stories: Jay's story

Rare on Air

15-02-2024 • 3 minutes

Episode 7 of Rare on Air Stories is here!

Meet Jay, an individual living with Congenital Central Hypoventilation Syndrome (CCHS), a rare invisible disability diagnosed since birth.

In this episode, Jay pursues his passions despite the challenges posed by CCHS. Hear how he advocates for disability rights, spreads awareness, and embraces life's joys.